On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Wednesday, October 27, 2010

We are back home

We are back home and didn't get admitted today.  She was sedated this morning for her bone marrow aspirate.  Going without food just about killed us both.  She was so crabby!  The nurses in the wake-up room shooed us out of there with her in my arms still flailing.  Maybe it had been a long day for them.  She threw her spill-proof sippy cup full of root beer two times and somehow it somehow managed to spray all over the floor - so much for "spill-proof".  She kept pulling off her little pulse meter thingy and she kicked so much that they never got a reading from her blood pressure cuff.  I assured them that she hasn't had high blood pressure. 

The wake-up nurses sent us back up to the empty Oncology Clinic where we met with Dr. Fluchell and debated for about an hour about either admitting her for the 5th (and final) round of chemo.  He consulted Dayna (our Physician's Assistant) and Dr. Barnett.  We all decided that it was most important to get her Cellulitis more healed before we start the final round of chemo. 

Her Cellulitis is looking even better today.  Her CRP (blood test that shows inflammation) was down to 1.4.  A normal CRP is 0.8 or lower.  Previously her CRP was as high as 21.0, so we know that her Cellulitis is slowly healing.  It worried us all that it flared up over the weekend, but we hope that it continues to get smaller and smaller each day. 

So, she is set up to be admitted for her chemotherapy round #5 on Tuesday, November 2nd.  I had such mixed feelings as we were discussing the options with her doctors.  I was all packed and ready to stay the night with Erin if they admitted us, but as I was driving off down the freeway I just knew that we would be coming home today.  I am glad to be home and to spend the Halloween weekend here with my family.

5 comments:

  1. Hi Jill - I'm glad that Erin gets to spend Halloween here in Logan. I here there is a carnival at your ward. I'm going to go with the Parkers. Anyhow - I hope J and I didn't overwhelm John the other day with produce - I handed him some tomatoes and she gave him some squash. Oh and y'all have been added as Erin H. and family to the St. John's prayer list.

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  2. hooray! i'm glad you guys get to spend the weekend together - and halloween, too! you deserve it! we pray for erin and you guys every night - i'm so happy to hear that the cellulitis is getting smaller. i'm no expert, but waiting sounds like the best option to me, so her little body can be as strong as possible.

    enjoy the weekend!!

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  3. Even though it would be nice to get it all over with sooner, I'm glad you won't have to celebrate Halloween in the hospital. Now you just have to be out for Thanksgiving!!

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  4. YAY for trick or treating with the fam! Have fun and give that cellulitis a few more days to heal. Im sure its hard being delayed, but it sounds like you have a good attitude. Hang in there!

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  5. I'm glad the cellulitis is improving. Sorry she's not there so we can visit her today but we will come visit another day. She's a doll in those pictures. We think of you daily and pray for Little Erin lots and lots. Happy Halloween!

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