On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Tuesday, October 19, 2010

How's it going?

We are so happy!  Erin's ANC is still 600, but it should start coming up.  She has a blood test on Thursday.  It looks like she'll be admitted to Primary Children's on Oct. 28th if everything continues to look good.  Her last and final chemotherapy (Round #5) will last 21-28 days.  She goes to Primary Children's on Days 1-2, Days 3-7 she GETS TO COME HOME and then she goes back on Day 8 to stay for the rest of the chemo round.  They only give her chemotherapy drugs on days 1,2,8,9.  Her ANC will still be relatively high, this is why she will get to be home for days 3-7 during the chemo.

Erin is really doing so well at home.  She is her old sweet self - the way she was back in May before she was diagnosed.  Oh, she is just so sweet.  She is constantly running to me with her arms open wide to share a hug with me.  She gives THE BEST hugs.  She holds on so tight.  She tells me often, "Mom, I love you!"  I just think that this little girls has angels about her all the time.  She understands so much - much more than I can imagine.  I think she has been blessed to understand this trial that she is going through.  Thank you for your prayers on her behalf, I'm sure that Heavenly Father is listening and He is blessing her in countless ways.

3 comments:

  1. Hi Jill -
    I saw that you are playing at St. John's Espiscopal during November (I'm assuming you are the Jill Hughes that was listed). Since you are gifting us with your music - would it be okay if I had y'all officially added to our prayer list? You'd be prayed for during services.. They say first names, e.g. Erin, or they will sometimes say The XX Family. Let me know if you object, please- rivervision at gmail dot com.

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  2. No problem. We'd love that! I am signed up to play at St. John's, but one of my piano students is going to actually be the one providing the skills. Thank you Brooke!

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  3. I think you're right about that angels part. What a blessing she is!

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