On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Friday, October 1, 2010

Friday Pictures

Erin has her ups and downs.  This morning she's thrown a few fits, mostly I think she just really hates her tubes.  She got all wrapped up in them during the night and screamed for awhile while I unwrapped her.  It is just not natural to tether a two year old all the time, but it is sort of cute when she goes across her room pushing her IV pole with her. 

Right now she's really happy.  Her music therapist is playing with her and they are using all sorts of shakers and a Q Chord.  I have never seen a Q Chord before, but it's a very interesting instrument - it's sort of like a mini keyboard without the keys.  I will probably have to add it to my list of instruments I eventually would like to own.  Erin loves music.  We have a CD player that my aunt gave us to use here.  Playing music just makes the room so much more lively and less like a hospital room.  We play the Primary Children's CD's, the Mormon Tabernacle Choir's Heavensong CD, Children's Raffi Songs, and a Classical Piano CD that I put together.

Erin's sore on her head is slowly healing and her ANC (fighter white blood cells) has been at zero for 7 days.  Last stay her ANC was zero for 11 days.  Today the Nurse Practitioner told me that some of her counts are very slowly creeping up.  That gives me hope that her ANC will come up way earlier than expected.  So, hopefully we'll beat the average 35 day stay by a long shot.  This is me being really positive!

We had a good visit from Cami and her mom. 
She and Erin had fun playing Polly Pockets together.


Decorating our window.


Playing with play dough and wearing her new
"little bear" hat.  Isn't she so cute?


Having a little bath.


Playing with her Music Therapist.


We decided to play doctor today.
Erin and I attached some tubes to her doll's chest with a Tegaderm dressing.  She has been cleaning the tubes with alcohol wipes and putting steri strips (we cal them stickers) on the baby.  When we pulled the "stickers" off the baby didn't even cry.  This is good play for Erin so that she can understand all about the tubes and "stickers" and how they are used to help her get better.


2 comments:

  1. we've never seen the music therapist in any of our stays there, but it sounds like they're a lot of fun!

    i enjoyed seeing your guys' pictures! you do so many little things that i'm sure help erin out a lot - the music and decorating, etc. i'm going to try the music idea the next time we're inpatient.

    we ARE going to come and visit you guys, i promise! its just been rotten timing - first elena's clinic visits got pushed back and then i got sick and then lily got sick and now she's almost better (still symptomatic though - so probably not a good idea to try traipsing into the ICS!!) and yesterday, elena got sick, too! ergh! :) we're all going to get better and come see you guys!

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  2. I love the pictures! You sure are cute, Erin! I really like your new "little bear" hat. :)

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