A few pictures of Erin having fun with the family.
You can almost see her little backpack that we bought that conveniently holds her pumps so that she can still play and we don't have to monitor her tubes and pumps. It was quite a job to get her to wear it the first time. As you can see, we have the shoulder straps tied together so she can't take it off.
Erin and her cousin Seth.
Cecily, Caleb, and Erin.
It was so much fun having Erin and John arrive at Bear Lake with the rest of us. She woke up this morning back to her old self. She gets so changed living in the hospital. I think she spent 2 days crying and fussing and just being completely unhappy. It is such a tough transition for her and I'm sure it's difficult for her to fully understand how to act in the hospital and at home. We are glad to be together and we're enjoying relaxing and spending time together. I just snuggled Erin to sleep for her nap and it just felt so good to snuggle her away from the hospital and its noisy IV pump alarms and constant nurses and doctors.
Her sores on her head and diaper area are both showing excellent signs of healing. We haven't given Erin any pain killers in the last 24 hours and she seems to be coping fine. We have adjusted her meds to have the Vancomycin and the Meropenem run at the same time through her two tubes so that simplifies having her hooked up so much.