On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Sunday, October 17, 2010

Bear Lake

A few pictures of Erin having fun with the family.

You can almost see her little backpack that we bought that conveniently holds her pumps so that she can still play and we don't have to monitor her tubes and pumps.  It was quite a job to get her to wear it the first time.  As you can see, we have the shoulder straps tied together so she can't take it off. 



Erin and her cousin Seth.


 Cecily, Caleb, and Erin.


It was so much fun having Erin and John arrive at Bear Lake with the rest of us.  She woke up this morning back to her old self.  She gets so changed living in the hospital.  I think she spent 2 days crying and fussing and just being completely unhappy.  It is such a tough transition for her and I'm sure it's difficult for her to fully understand how to act in the hospital and at home.  We are glad to be together and we're enjoying relaxing and spending time together.  I just snuggled Erin to sleep for her nap and it just felt so good to snuggle her away from the hospital and its noisy IV pump alarms and constant nurses and doctors. 

Her sores on her head and diaper area are both showing excellent signs of healing.  We haven't given Erin any pain killers in the last 24 hours and she seems to be coping fine.  We have adjusted her meds to have the Vancomycin and the Meropenem run at the same time through her two tubes so that simplifies having her hooked up so much.

2 comments:

  1. What a cutie with her backpack! I bet that makes life a little easier and more "normal" for her. She looks as cute as ever! Enjoy your time at home.

    ReplyDelete
  2. I LOVE Bear Lake! My fam has a condo over there and we look forward to going over there. I am so glad that Erin was able to get out and play even if it was with her cute little back pack. I sure you were creative in getting her to wear it just like her little mask! Nothing better than snuggling!!! So glad you guys are enjoying the time at home!!!

    ReplyDelete