On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Thursday, October 7, 2010

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Erin just received Neupogen through her IV.  The Neupogen will help Erin's body produce white blood cells so that they can help fight against her sore.  She is scheduled for an MRI at 8:00am tomorrow morning.  They upped her dose of Oxycodone from 1.0ml to 1.5mls.  She also has an order for Morphine waiting if we decide to give that to her.  She seems to be feeling a bit better since she had the platelet transfusion, the Neupogen, and a bath.  I think soaking in the bath really can help her diaper area heal. 

She is eating a red Popsicle and watching Strawberry Shortcake for the 2nd time today.  It's been a long day, but a good one too.  I got to visit Rachel Steele (our 16 yr old AML friend) who is in the end of her 3rd round of chemo.  I love seeing Rachel's beautiful smile.  Marie, her mother, came to our room and we chatted for a good amount of time.  It was really really really nice to talk with Marie about AML and how it's changed our lives.  We wish that Erin and Rachel could get together and hang out, but there's no doing that while Erin and Rachel's counts are both at zero.

1 comment:

  1. Jill! I wanted to tell you about this sooner, but our lives got turned upside down this week. Anyways, we came to visit on Tuesday and missed you, but got to meet your mom and meet sweet little Erin! Oh my word! She is THE sweetest thing in the entire world! We opened her door and your mom had stepped out and she was sitting in her chair and she looked over at us (who she didn't know from Adam) and said, "Hi!!" in the most excited, sweet little voice. I just about died it was so cute! :) She was so friendly and chattered a lot while we were there. I can't get over how cute she is!! She really does talk so grown up, like you said. There was such a special spirit about her - I really was struck by her. She is a special, strong little girl - and so, so sweet. I am SO glad we got to meet her! And I hope we get to finally meet you guys in person, too. (Hopefully tomorrow night!)

    We are praying for Erin and will be fasting for her as well. Sweet girl. I hope things start looking up soon.

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