We just vacation so hard when Erin is home with us. We've had a wonderful time at Bear Lake. Erin loves the beach so much. She plays and plays in the sand and runs in the lake water. We put an aquaguard over the tubes and central line bandage. An aquaguard is a plastic window that has sticky edges and blocks out water and keeps her bandages dry. It covers her whole chest and she's such a good sport to let us put it on her. It has to be so uncomfortable to be wearing a thick plastic thing all day, but she knows that if she wears it then she can have more fun. We put her in a swimsuit and sun hat and she ran around enjoying herself. We still kept a close eye on her so that she didn't submerge herself in the water.
We are scheduled to take her to Primary Children's on Monday for a chest CT Scan. The doctors want to see if the nodules on her lungs have gotten smaller/bigger. Then we have an appointment with our Oncologist to determine when we'll start the next round of chemotherapy. I am hoping to start it right away, like yesterday. The sooner we get started, the sooner we'll be done.
So glad your family can get out and enjoy the outdoors. Erin is amazing! Good for her to be able to play in the sand and the water! We're keeping you all in our prayers.
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