On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Tuesday, August 24, 2010

Platelet Day!

Erin is receiving platelets today.  Hopefully this will help her appetite grow. 

We received some surprising news when we found out that she is on the chart for her height!  We were so excited to see that she is in the 20th percentile for height.  She hasn't even been on the chart since she was about 6 months old.  She is a very small petite little thing.  Her weight is another thing, she hasn't gained anything since being there at the hospital.  Her weight hasn't dropped, it just hasn't gotten higher.  I can't imagine why?  She eats ice cream and pizza and cheese almost every day.  Well, one of our doctors really wants us to give Erin an appetite increaser.  Right now I am against giving it to her.  She has some pretty thin Hughes genes and I just don't think it would be a good idea to give her something to make her eat more, maybe if she was malnourished or something.  I added up the other day that we have given her 19 different medications already.  We are keeping the pharmaceutical companies in business.

The blisters in her mouth have started healing and she doesn't seem bothered by them.  Her ANC (fighter white blood cells) are at zero.  They have been zero since Sunday.  She seems pretty happy in her circumstances.  She is sleeping well and she is still charming all the nurses and staff in the Immunocompromised Unit (ICS).  Today she has been playing with a doll house and a tea set, making hot chocolate over and over. 

When we started into round three of chemotherapy we really were concerned about how awful it would be because the chemo is 10 times stronger than before.  The doctors made us feel like it was going to be so difficult.  We have been so blessed to have Erin sailing happily through this difficult stage in her chemotherapy.  We have felt so many miracles and blessings that have come from all of your prayers and from your faith in our Savior.  He is the one that we look to.  He is the healer.  He not only heals our wounds, but he heals our hearts too.  

1 comment:

  1. I'm glad that there are so many good thing happening, amongst all the change. It's hard to think that you are 1/2 way over! Congrats to Erin for being such a trooper!