I arrived at Primary Children's last night after Erin had gone to bed. Our nurse woke us up a bit before 7 am and Erin sat up in bed and pointed at me and yelled, "there's mommy!" It's been a great day! We snuggled in bed and we played with the dollhouse, puzzles, balls, doctor stuff, listened to CD's and watched some Dora the Explorer.
I brought down a song that Songs of Love made for us titled "Princess Erin" and we danced to it together. Songs of Love is a wonderful foundation that creates a song just for your child with a life threatening illness. You can learn more about them here. I'll have to figure out a way for you to listen to it here on the blog.
Erin's nurse, Mitch, and I changed her dressing on her central line today. Erin really tolerates her line changes so much better now. We don't have to hold her down anymore. Before Mitch came in, I told Erin that we would be changing her bandaging, and when he opened the door, she obediently laid down on the bed and put her arms up so he could get started. He was very impressed. It continually amazes me how much she understands.
It is so wonderful to be able to spend some time here with Erin. She is such a sweetheart.