On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Monday, August 23, 2010

Photos

Little Air Bear and Dad


Erin was so happy to have her Mom & Dad
in the room with her.


She likes it when we tickle her.


I love it when she covers her mouth when she laughs.


She loves to run up and down the halls.
It is very good exercise!
Her ANC is ZERO now.
She won't be allowed out of her room until
she's released from the hospital (estimated 9/10).


She loves to explore while she's out.
The nurses let her peek into just about anything.


Aunt Diana came to play and stayed the night with Erin.


Erin's is doing pretty well.  She is sleeping a lot these days and she is still on Zofran for the nausea.  She had a blood transfusion a few days ago and she's due for platelets in a day or two.  The skin on her hands is still peeling and her lips are peeling too now.  She has started developing blood blisters on her gums but they don't seem to bother her.  She has also grown very addicted to root beer.  We haven't been able to get her to drink anything (even water) other than root beer.  Maybe the root beer settles her stomach and water might make her more nauseous?  We don't know, but she's a little soda pop drinker now.  She and my mother played a great game of hide and seek this morning.  It is amazing what a two year old can find entertaining while not being allowed to leave her room.  Thanks for checking in on us today.  We feel the strength of your faith and prayers.

5 comments:

  1. I love love love the hat. She is so adorable.

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  2. What? Another comment disappeared ;) I must be posting them wrong, lol. I love her little smile - she looks just like a tiny pink fairy princess.

    The other thing I mentioned is that in my case water does increase nausea and soda goes down easily. What I came on here to add is that if you get concerned about her sugar intake you can cut the soda with regular carbonated water. Start by adding just a little and then gradually increase it. half and half is still pretty good. I generally add just a little sprite, Gatorade, or juice to carbonated water to make it go down easier - but I'm concerned about calories and Erin isn't ;). Root Beer is #1 for a queasy stomach. Sprite and Ginger Ale are the second.

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  3. So the dentist in me had to cringe a little when I read about the root beer! The last thing you want to worry about with everything else is cavities and an oral infection which the root beer could do real fast. Hopefully she'll start to do better with water soon, but I would at lest try to wash down the rb with some water to rise the sugar out. Ok, now that I've said that and sounded like a complete nerdy dentist (my conscience feels better :) )...I hope she gets to go home as planned and I'm glad you guys got some time together for your anniversary! Love you guys!
    Cody

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  4. Super cute hat. And super cute that she puts her hands to her mouth when she giggles. What a cutie! So glad she's done well (overall) with the increased dosage.

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  5. Cody,

    Where did you get your dentist license? I will have you know that I gargle with rootbeer every night and have never had a problem. :) You will be happy to know that her rootbeer kick has faded over the last few days. By the way thank-you so much for the hats that you and Amy sent. Erin has loved them.

    John

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