Previously today our home health nurse told us that her ANC was 900. We were thrilled, so we took her to Bear Lake. A few hours later Primary Children's called to give us more details on her blood work and they told us that it was 400. Apparently, the secretary at Logan Regional who read the results to our home health nurse didn't know how to read the lab result. Soooo . . . 400 it is and we are gallivanting around people here. She's been pretty good at wearing her mask, but still we're taking a little risk.
Today she was running up and down the deck while it thunder stormed. We love the rain and the sound of thunder. It is so wonderful to see her running and using her little chicken legs.
Today our home health nurse changed her dressing on her central line. Erin did so well sitting relatively still. John and I sat by her, but we didn't hold her down. It seems that if she is able to just lay there that she is happier than having us restrain her. In the past we've restrained her so that she doesn't pull the tube out of her chest. She seems to understand so much more now about her central line and what it takes to take care of it.