On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Sunday, August 1, 2010

Maybe Our Last Night?

It has been such sweetness being here with Little Air Bear tonight. I haven't seen her for 5 days and she is so changed. Her old mischievous two-year old personality is back. I am thankful that she is not masked by the fevers and sickness anymore.

She and I had a wonderful time reading stories tonight. I love to read Dr. Seuss' ABC Book with her. We read it so much that she knows what words come next. When we get to the "F" page she says"fiffer feffer feff" for me. I love hearing her say it, it makes me laugh now thinking of it. When we get to the "K" page I make her say the word "kerchoo" over and over and we giggle together because it sounds so funny.

John's sister Diana stayed with Erin the last two days and the nurses had such wonderful things to say about her and how good she was with Erin. I'm so thankful that we have a wonderful supportive capable family that is able to help us through this. The kids are really excited to see Erin again. At quiet times in our home someone often comments on how they miss Erin. Cecily came to us on Friday night and cried about how she missed her little sister. It is so touching to see the love that our family has one for another.

We are waiting in anticipation for Erin's CT Scan in the morning. The doctors have ordered a chest scan to see how the nodules in her lungs are doing. Can you believe that all this time I never once asked the doctors what nodules on the lungs really even means. Sometimes there just isn't enough time for me to really understand everything that is going on. Her blood counts are really doing well. Her platelets have doubles in number, but her ANC stayed at 300. I hope to see a bigger number tomorrow. We have packed up most of her room, so they better not tell me that we're staying another day.

4 comments:

  1. Oh, wishin' for the best news for tomorrow! I have been thinking of her sweet face for weeks, and she was a big part of my fast today. I love to check in on her, and the news... Keeping you all in our prayers :)

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  2. Hey guys, we hope she can go home today! You continue in our prayers and we marvel at your strength and faith through this difficult time. You're an inspiration to all of us! Love you guys.
    Cody and Amy

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  3. Yay! So excited to see you and little Erin next week.

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  4. Yay for home! Just wanted to say that I enjoy your blog and your positive attitude that comes shining through!
    -Allison
    Mom to Matt, 12 - brain cancer fighter!
    (I'm the one in your parents ward.) :)

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