On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Monday, August 30, 2010

A Little Prayer and Some Simple Faith

Erin is still very sick.  Her ANC is still zero.  Her temperatures have been getting up to 104.3 F (40.3 C).  She can only have Tylenol to bring the fevers down (She is not allowed to have Ibuprofen while she is being treated for Leukemia) and she can have it every 4 hours, but she isn't allowed more than 5 doses in a day.  Her fever hasn't stopped since it started so suddenly on Saturday morning.  I hope that we're near the end of this!  She gets so uncomfortable and cranky when she's burning up.  I feel so bad for her. 

We had an AMAZING night nurse last night.  I talked to her before bed and I was a bit frustrated to hear that she would be coming in almost every hour (or more) to check on Erin's heart rate, temperatures and to turn on/off medications and fluid on her pumps.  Erin needs good sleep to let her body heal.  To my amazement, both Erin and I slept so well!  Our nurse was a pro (her name is Amber)!  She never turned a light on and I never heard the door even open or close.  It makes all the difference when we get a nurse who lets us sleep well!  Erin slept from 9:30 pm all the way until 9:00 am with barely a whimper or cry.

Before Erin goes to bed she says her prayers.  She has always been pretty good at saying her prayers regularly, but she never lets us help her with the words.  She likes to say it by herself, and she almost always says the same little prayer. 

It goes like this . . .

"Dear Father.  Please help me.  Amen."

She has such sweet special faith. 

We've been playing the Primary Children's Songbook CD before going to bed and it really helps calm her down.  Last night, before we went to bed, I laid in bed with her and we chatted a bit about Jesus and Heavenly Father and how they love her so much. 

She told me, "Jesus loves Erin!" 

I said, "Yes, Jesus does loves Erin.  And Jesus will help you get better."

She said, "Yes, Jesus will help me."

8 comments:

  1. hi jill -
    i took katelyn and landon parker on a little walk tonight.. from their house down to the klausen's.. as we reached the klausen's kate said "that's where cecily lives".. and i said "no, she doesn't live there, see there through where the lights are? that's where cecily lives." then i said to her "you know cecily's sister is sick, don't you?" she responded "caleb isn't sick" and i responded "no, cecily's sister erin is sick and in the hospital" to which she said "yeah, i know erin is sick." and i said "we should pray for erin" to which she responded "yeah, we should pray for erin." i know that's a long way to say - yep, sounds as though that dear 3.5 year old is thinking about erin as well. i hope that makes even a small difference.. y'all are in my prayers every day.

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  2. Poor little Erin, but what a sweetheart. Get better sooooooon!

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  3. Brooke, thank you so much for sharing that!

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  4. I love her faith. I will pray for her tonight. Hang in there, Jill. :) My dad always likes to tell me this little rhyme, "For every worry under the sun, either there is a remedy or there is none. If there is one, go and find it. If there is none, never mind it." I don't know why I thought of that, but don't worry...your sweet little girl will be taken care of. "Jesus will help her." :) What a beautiful girl she must be.

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  5. What a sweetheart. If only we could all have the faith of a little child. Thank you for sharing.

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  6. What sweet simple and sincere prayers. She is a sweetheart and our family sure hopes that she can start getting better. Ben prays all the time for her and asks when we get to see the Erin that we say our prayers for? Someday, I keep telling him. Someday.

    Hope you are doing well and so glad that you have good nurses that let you sleep!

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  7. It all comes down to one thing, doesn't it? You are an inspiration to me. Keep blogging, please.

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  8. I hope Erin feels better soon! She is in our prayers every day. Give her a hug and kiss from us. :)

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