Erin is still very sick. Her ANC is still zero. Her temperatures have been getting up to 104.3 F (40.3 C). She can only have Tylenol to bring the fevers down (She is not allowed to have Ibuprofen while she is being treated for Leukemia) and she can have it every 4 hours, but she isn't allowed more than 5 doses in a day. Her fever hasn't stopped since it started so suddenly on Saturday morning. I hope that we're near the end of this! She gets so uncomfortable and cranky when she's burning up. I feel so bad for her.
We had an AMAZING night nurse last night. I talked to her before bed and I was a bit frustrated to hear that she would be coming in almost every hour (or more) to check on Erin's heart rate, temperatures and to turn on/off medications and fluid on her pumps. Erin needs good sleep to let her body heal. To my amazement, both Erin and I slept so well! Our nurse was a pro (her name is Amber)! She never turned a light on and I never heard the door even open or close. It makes all the difference when we get a nurse who lets us sleep well! Erin slept from 9:30 pm all the way until 9:00 am with barely a whimper or cry.
Before Erin goes to bed she says her prayers. She has always been pretty good at saying her prayers regularly, but she never lets us help her with the words. She likes to say it by herself, and she almost always says the same little prayer.
It goes like this . . .
"Dear Father. Please help me. Amen."
She has such sweet special faith.
We've been playing the Primary Children's Songbook CD before going to bed and it really helps calm her down. Last night, before we went to bed, I laid in bed with her and we chatted a bit about Jesus and Heavenly Father and how they love her so much.
She told me, "Jesus loves Erin!"
I said, "Yes, Jesus does loves Erin. And Jesus will help you get better."
She said, "Yes, Jesus will help me."