On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Wednesday, June 2, 2010

Acute Myeloid Leukemia: How are we doing?

Erin is really a trooper. She is so kind and loving even though she is in a lot of pain today from the surgery to insert a tube into her heart (a Broviac central line), a spinal tap and the bone marrow biopsy. The doctors and nurses love how sweet she is. After they poke her, or take her temperature, or change her diaper, or give her medication, or give her food, or give her an ultrasound, or draw blood, or do anything, SHE SAYS "THANK YOU!" She is a good example to all of us on how kind we can still be, even when we are feeling rotten.

John and I go through phases. Sometimes we are sobbing, sometimes we are laughing. This is a rollercoaster we haven't ridden before. There will be ups and downs. One thing for certain though, is that we feel the comfort from the Spirit. We are not angry. We are not asking "why us?" We know that our Heavenly Father is mindful of us and our Little Air Bear (her nickname).

Tags: "Childhood Acute Myeloid Leukemia" "AML" "Leukemia" "M7" "Acute Megakaryocytic Leukemia"

16 comments:

  1. awww, what a doll. Hang in there you guys. You're all in my thoughts and prayers.

    ReplyDelete
  2. We are praying for you guys Jill. If you need anything, please let me know!

    ReplyDelete
  3. Abbey just told me about your sweet little Erin. We will be praying for you and your family!

    ReplyDelete
  4. Sweet loving Erin! Thank you for your amazing example!

    ReplyDelete
  5. We just heard. Our hearts ache because we know Primary Children's all to well. I'm so grateful that you can find comfort and peace. I'm so grateful that Erin is in the best hands and will be given the more amazing care. There are amazing resources down there and so many "helps". Just ask. I'm so grateful that you have family so near to jump in and help with your other children. If you need anything or if we can help anyway. Please, PLEASE let us know.

    ReplyDelete
  6. We love you guys, Jill. The blog is a great idea. We'll be checking in frequently. Give Erin kisses from Aunt Jen and Uncle Brian.

    ReplyDelete
  7. We have had family go through this. The children are so sweet! LOVE Erin. Hang in there. I'll check back often. Becky

    ReplyDelete
  8. I can't think of two better people to help Erin through all of this treatment. We are thinking about and praying for your family!

    Brandon & Julianne Mackay

    ReplyDelete
  9. You are in our prayers! Please let us know if there is ANYTHING we can do. I would love to take your kids anytime. Thanks for your amazing testimony, you are such a rock.

    ReplyDelete
  10. Jill, I just talked to Erin and heard about little Erin. My heart is full for you guys. We will add our faith and prayers to yours as well.

    ReplyDelete
  11. Thank you for always being a great example to me. Sending all my love and prayers. Aloha and I'll be thinking of you everyday.
    Love Joan Atwater

    ReplyDelete
  12. Thanks for setting up the blog.

    I know exactly how you feel regarding not feeling angry and rising up to the task at hand, regarding cancer. Reading these entries brings back a flood of memories for me...the surgeries, the tube insertions, the chemo, the team of people all working together to achieve a common goal. It brings emotions to the surface for me.

    My treatment was six months, and though it looked like an eternity at the beginning, and had very tough times throughout, at the end, looking back was a sweet experience, much to be treasured. Cherish the next six months.

    Okay, now my eyes are tearing up...

    ReplyDelete
  13. We'll be praying for you and for Erin.

    ReplyDelete
  14. Oh, oh, Jilly...I am so sorry. We have been praying for Erin. What a sweetheart. We will keep you in our thoughts and prayers. Lindsay and Joel

    ReplyDelete
  15. Hugs and kisses from New Zealand x

    ReplyDelete
  16. Erin is the sweetest! We love her and you guys! You're in our thoughts and prayers! Thanks for setting up this blog!

    ReplyDelete