On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Thursday, June 24, 2010

Day 24

Erin is eating a red Popsicle and watching Baby Einstein's Meet the Orchestra. Our nurse today was quite impressed that Erin knew the word Orchestra. We have had the best care here at Primary Children's Medical Center. Every one of our nurses has taken so much time for us. Each nurse only has 2 patients and they work 12 hour shifts. We L-O-V-E our nurses. It's always a treat when we get the same nurse 3 days in a row.

When a nurse comes in the room they take time to play with Erin. We've had nurses sit with her and play with her for 15 minutes before they take her blood pressure or temperature. They are so relaxed and don't ever seem to be in a hurry. They often let her take their stethoscope and check their heart. Today Erin's nurse offered to sit with Erin so I could go workout since the Kids Crew downstairs was short on volunteers to play with patients. It was absolutely thrilling to get out of the hospital room and run 3 miles and workout. The Jewish Community Center where I can workout is amazing and I'm sure I'm being spoiled in being allowed to use it whenever I want for the next 6 months. I need it though, it is not kind to ones figure to just sit here and eat.

Today Erin and I played hide-and-seek. A 2 year old thinks it's pretty cool when you hide over and over in the same place in a small room. We also played with an ABC puzzle to work on Erin's letter sounds and recognition and then we played on starfall.com to further the fun with letters. We took care of her baby doll and stuffed animals with her doctor set, and we watched Cinderella for the hundredth time.

Erin's ANC is still zero. Not much of an improvement from the zero it was yesterday. I was planning on asking the doctor if it was a high zero or a low zero. We slept pretty good last night. Erin woke at 1:30 am and cried (probably more bad dreams) but after that she slept through until 7:30 am. It was sweet to have her wake up and ask me to come snuggle her.

1 comment:

  1. Having a nurse devote so much time to a patient is wonderful. I'm so glad that Erin is getting great attention from them. She is such a cutie with her new hair do ;o)