On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Wednesday, June 23, 2010

Day 23

acute myeloid leukemiaToday we had ups and downs. Erin is a bit low on sleep. She didn't sleep so well last night, she kept waking up and crying and saying "stop it." I think she's having nightmares of someone taking her blood pressure. We're feeling a bit pent up here hanging out in this room all day. Sometimes I think it'd be nice to just walk out the door and take Erin for a walk. Soon I hope!


To break up the day I asked the Kids Crew to send up a volunteer to do a craft with Erin. The volunteer was so good. They laughed and danced together. They made cute pictures with foam stickers and colored them acute myeloid leukemiawith crayons. They played with streamers taped on a ruler. It was so nice to have someone else here entertaining Erin.

After the volunteer left our friend Cris came by for a visit. Cris was John's roommate when we were engaged and he's been a good friend ever since. He just works right here at the hospital so he often stops by at the end of his day to play with Erin. He is one of her favorite playmates. When he came to the door she yelled "hi Cris!" She was very excited to see him. They tossed a ball, did some silly things with her bunny, and then Erin painted Cris' fingernails (sort of - he was smart enough to put on a surgical glove first). See picture above of Erin painting Cris' fingernails. I didn't fare so well with the fingernail polish. I have it up and down my left hand.

I hope that Erin sleeps well tonight. We could use a full night's sleep so that we can have a better day tomorrow.

2 comments:

  1. next time maybe you should let her paint your toenails instead ... or wear surgical gloves :)

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  2. That's a very creative idea!
    I'm also glad that you got a good run in today. That always helps to burn some energy.

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