Sometimes I run out of creative titles for these blog posts on Erin's Acute Myeloid Leukemia. This blog is the first blog I've ever done. I always thought blogging wasn't necessary for me to do. It takes a lot of time to put together these little blips on our life, especially when I worry that maybe my grammar isn't up to par. But, it has been a nice way for us to relay information so that you don't knock down our door trying to find out what is going on in our new strange life. It is also a therapeutic way for me to sort of vent my feelings and keep track of what is going on. We intend to print and bind this blog and give it to Erin someday since she will most likely not remember anything from the next 6 months.
Well, anyways, "day 25" is a great title when you think that we've been at the hospital for 25 days. It also sums up the fact that we're still here waiting and waiting for Erin's ANC to come up. It's still zero. I wish that there was something more exciting to say about it. To use the word "zero" for her ANC is really boring. Zero can be interesting though, like if you say that you have zero zits on your face, then zero becomes a very interesting word because then we would all envy you.
Today Erin played Barbies with the Kids Crew Volunteer while I worked off my french fries and donut. We also had a visit from the music therapist and Erin got to play with this little rubber thingy on a stick that made a duck sound. It was really cool. I helped change the dressing on her central line. It has been a week since we changed it and it is healing very nicely. She wasn't quite so upset while we changed it. I held her arms and another nurse held her legs while our nurse Gina changed the dressing. Things went smoothly and I'm thankful that Erin is healthy and that we are having a boring stay at the hospital. It wouldn't be good if we were worried about fevers or infections or other such sickness while her immune system is so low. It has also been a blessing that her blood pressure has stayed relatively lower than before so she hasn't needed medication for the last week to keep it low. When she woke from her nap today John was there and she was very excited to see him. Somehow, having two parents in the hospital room makes things so much more interesting for us all rather than being there with just one parent.
Tags: "Childhood Acute Myeloid Leukemia" "AML" "Leukemia" "M7" "Acute Megakaryocytic Leukemia"