On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Wednesday, December 8, 2010

Day 27

Well, Christmas is just around the corner.  I am so anxious for Erin to be out of Primary Children's.  Despite all the decorations, the Christmas music, the beautiful tree in our house, the sugar cookies we decorated on Tuesday, it still doesn't really feel like it's Christmastime.  I am still thinking it's June and that we should be gearing up for adventures at Bear Lake.  I can't believe how time has stopped for me since Erin was diagnosed.  The patient board that lists all the patients in ICS is starting to be more sparse as families are going home and not coming in for treatments right now, probably so they can be home to enjoy Christmas.  Erin is still here.

Her ANC is zero.  White blood count is 0.5.  Monocytes are zero.  Bands are zero.  Zero. zero....zero....

Hopefully tomorrow . . . . *grin*

We found a pretty bad bruise on Erin's skin over her rib.  It probably happened when her platelets were 11 (normal platelets are 400 or so) at the beginning of the week.  It's hard to know how a busy two year old got a bruise.  Hopefully it will just go away quickly and not cause any problems while her ANC is zero.

When I got to her room tonight she wanted to know if I had a present for her.  I didn't bring her anything this time, so I gave her my make-up bag to play with.  She loves to play with my make-up.  All of my kids do, and for some reason it doesn't bother me that they use it.  I left her playing with it and then I went out to talk to the nurse.  After a minute the nurse and I peeked in on Erin through her window and we saw her pulling a chair up to her mirror, she climbed on the chair, and then she proceeded to use my eye lash curler to curl her eye brows.  Soon two other nurses joined us watching and giggling as Erin proceeded to curl her brows.  Erin looked over at us and climbed off her chair and started twirling around and around saying "I'm a princess."  We opened the door and cheered as she danced and twirled for us.  I made a little memory of that moment and I hope to keep it with me forever.  I loving making memories of my children. 

Many of the nurses told me that they saw Erin's tree at the Festival of Trees.  They all have commented on how beautiful it was.  It has been fun to tell them that the beautiful tree is waiting in our living room for Erin to see.

Well, here's the the end of day 27 and on to day 28 tomorrow.  We were told that this round would be through roughly December 8th-12th but it looks to me like she'll won't make it by the 12th since it usually takes 4 or so days for her ANC to be high enough to come home. 

Little Air Bear please make some neutrifils and get that ANC up!!

4 comments:

  1. You would think that we would be good at playing the "waiting game" by now. But it is never easy! We pray for Erin and your family constantly. We hope that her ANC starts to come up with great gusto really soon. Rachel loved visiting Erin yesterday! She was excited to see Rach and even pulled her car seat over by where Rachel was sitting so they could sit beside each other! Like you've said, years may separate them, but our two girls have a special connection! Hang in there!
    --Marie

    ReplyDelete
  2. What a silly, sweet girl. I loved that story about the eyelash curler. :)

    It must be so hard to sit and wait while seeing the list of other patients grow smaller. Hang in there!

    ReplyDelete
  3. Loved the story!!! I wish I could have been there to see that! :)
    We are praying very hard for Erin's ANC to come up!!!

    ReplyDelete