Erin's ANC is zero (so far it's been 15 days at having a zero ANC). Her white blood count dropped to 0.4 (it was 0.6 yesterday). A normal white blood count is 6.0-17.0. Her monocytes and bands are zero and her lymphocytes are 100. So, basically she is really zero zero zero when it comes to the immune system. When her immune system starts coming up the monocyte and band numbers comes up and the lymphocyte number goes down. She is getting a transfusion right now and it will run for 2 hours.
She's getting her transfusion and eating Cheetos
(orange finger syndrome)
The HopeKids event last night was wonderful! It was enjoyable to get out and the kids loved the pickelville performers. We were able to meet the Gabeler family there from Hyrum that had a 4th grade boy who conquered AML 3 years ago. It was WONDERFUL to meet someone who has been in remission for 3 years!!!!!! We hear so many sad stories here and it is often difficult to meet people who have conquered AML because we often don't hear the success stories.
The snow and cold has really hit our home in Logan, the icicles too. In fact, so much that the very long heavy icicles fell off our rain gutter and took the gutters and some of the siding off the front and back of our house. It's going to be a long winter at this rate! We're in touch with our home insurance and we hope they will be able to help out on the outside and on the inside where we have some water damage from when the roof leaked. John and I keep laughing (and sometimes crying) about how everything is falling apart. We are undergoing some serious trials right now, but I am so thankful to have John by my side! Last night, as I was going to bed I just laid there and let the tears fall. It felt good to cry a bit. I've really felt sort of awful/tired/forlorn/depressed lately - I'm not really sure what it is I'm feeling. And, it's not as bad as it sounds, I am just not my usual happy self. Today as I snuggled Erin in her hospital bed my spirits were lifted so much. I realized that I miss the touch of her little hands, the way she smells, and how she feels when she cuddles on my lap. I think that I just really really really miss her. I miss her being in our home with us. I miss our family having the freedoms that a normal would have. It has been 6 months and 1 day since Erin was diagnosed with AML. Life is so different and I just hope, I really hope, that we will be normal again soon.