It is wonderful to be home! We are thoroughly enjoying our time together without the pressure of figuring out who is going to be at Primary Children's. We have been getting to know how our Home Health Company works. It's really been a nice to be taken care of, they call and send us supplies and medications and we have a nurse that comes two times a week.
Our nurse came on Thursday and drew some blood from Erin's line. We were pretty astonished to find out the next day that her ANC had literally jumped to 1600. Yes, you are reading that right. 1600 (average ANC is 2000-3000). Wow! She was 900 the day we checked her into the hospital so I'm sure she's feeling better than she has in a very long time.
We are thankful that her ANC (fighter white blood cells) are so much higher, it really eases our minds about having her home (although I still use Clorox wipes each night on just about everything) . Our nurse at Primary Children's Hospital called and okay'ed her to go to some public places but we are still not allowed to be around anyone who is sick. We were also told to stop giving her the Fortaz (antibiotic) that we had to give 3 times a day through her line. We are glad that we don't have to stay up late and then get up early to give her that medication!
It has also been really nice to have a Home Health Nurse visit us twice a week because they have been changing her dressings on her central line. I am so glad that I haven't had to do that all alone yet!
I am so thankful for all of you who are helping us get through this. Sometimes we feel like nothing has changed and other times we just wonder how in the world we ever got into this situation. My perspective on life has changed so much. There are so many trivial things in life that we areoften enticed to think are important. Family and our Savior (as Cecily once told me) are the most important things in life. We are so grateful and thankful for your prayers, fasting, hugs, notes, cards, gifts, new friends we've made, and your thoughtful words of encouragement.