On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Saturday, July 3, 2010

A Very Suprising ANC!

It is wonderful to be home! We are thoroughly enjoying our time together without the pressure of figuring out who is going to be at Primary Children's. We have been getting to know how our Home Health Company works. It's really been a nice to be taken care of, they call and send us supplies and medications and we have a nurse that comes two times a week.

Our nurse came on Thursday and drew some blood from Erin's line. We were pretty astonished to find out the next day that her ANC had literally jumped to 1600. Yes, you are reading that right. 1600 (average ANC is 2000-3000). Wow! She was 900 the day we checked her into the hospital so I'm sure she's feeling better than she has in a very long time.

We are thankful that her ANC (fighter white blood cells) are so much higher, it really eases our minds about having her home (although I still use Clorox wipes each night on just about everything) . Our nurse at Primary Children's Hospital called and okay'ed her to go to some public places but we are still not allowed to be around anyone who is sick. We were also told to stop giving her the Fortaz (antibiotic) that we had to give 3 times a day through her line. We are glad that we don't have to stay up late and then get up early to give her that medication!

It has also been really nice to have a Home Health Nurse visit us twice a week because they have been changing her dressings on her central line. I am so glad that I haven't had to do that all alone yet!

I am so thankful for all of you who are helping us get through this. Sometimes we feel like nothing has changed and other times we just wonder how in the world we ever got into this situation. My perspective on life has changed so much. There are so many trivial things in life that we areoften enticed to think are important. Family and our Savior (as Cecily once told me) are the most important things in life. We are so grateful and thankful for your prayers, fasting, hugs, notes, cards, gifts, new friends we've made, and your thoughtful words of encouragement.

6 comments:

  1. How fantastic! Home is so healing, I am not surprised. I am so glad to hear you have a nurse visiting at home, what a relief. If you get tired of bleach, white vinegar is also a great antiseptic.

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  2. Way to go Erin! I will bleach for you anytime dear friend!

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  3. So pleased to hear it. I'm usually in tears reading your blog and thinking of the similarity between Erin and my little Eliza and not being able to comprehend just how you are dealing with all this but I've got to say it's also such a blessing to read your faith as you write. Keep you the good work and go go Erin!

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  4. What wonderful news! Glad that she is doing so well at home and that you are all able to enjoy time together.

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  5. Wonderful! Wonderful! Wonderful!!!! Way to go, Erin!!

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