We are counting down the days until we check Erin back into the hospital for another month long stay. It feels good to have one stay behind us and only 4 left to go. I've never SO looked forward to Christmas before! It seems strange to want to skip through summer and fall (my favorite time of year) and just jump to winter. Our goal is to be done with Primary Children's by Christmas! What a great gift that would be.
Little Air Bear's ANC is 900 today. The Primary Children's nurse told me that it is normal for it to drop down (it was 1600 last Thursday). Her platelet count has moved up to 277 (it was 176 on Thursday). We're still very thankful that she is able to be home with us. She is such a delight to have around. We just went to the library and checked out some books to read. I just read to Erin and put her down for her nap and John is swinging in the hammock with the other two kids and reading to them. Erin is so happy here at home and I think that she is really feeling good too. It's stinks that we have to take her back to the Hospital and fill her body with poison to get her well.
Tomorrow morning John will take Erin to Primary Children's to have a Bone Marrow test done and a Spinal Tap done. These procedures will be outpatient, but she will be under some anesthesia. We will check her into Primary Children's on Friday mid-morning for her next stay. Basically, we have the rest of today, Wednesday afternoon, and Thursday left until our life goes haywire again. What would you do with your last 3 days together?