We are counting down the days until we check Erin back into the hospital for another month long stay. It feels good to have one stay behind us and only 4 left to go. I've never SO looked forward to Christmas before! It seems strange to want to skip through summer and fall (my favorite time of year) and just jump to winter. Our goal is to be done with Primary Children's by Christmas! What a great gift that would be.
Little Air Bear's ANC is 900 today. The Primary Children's nurse told me that it is normal for it to drop down (it was 1600 last Thursday). Her platelet count has moved up to 277 (it was 176 on Thursday). We're still very thankful that she is able to be home with us. She is such a delight to have around. We just went to the library and checked out some books to read. I just read to Erin and put her down for her nap and John is swinging in the hammock with the other two kids and reading to them. Erin is so happy here at home and I think that she is really feeling good too. It's stinks that we have to take her back to the Hospital and fill her body with poison to get her well.
Tomorrow morning John will take Erin to Primary Children's to have a Bone Marrow test done and a Spinal Tap done. These procedures will be outpatient, but she will be under some anesthesia. We will check her into Primary Children's on Friday mid-morning for her next stay. Basically, we have the rest of today, Wednesday afternoon, and Thursday left until our life goes haywire again. What would you do with your last 3 days together?
As long as you are doing it together its not so important what it is!
ReplyDeleteThat's great you guys were able to spend the weekend the way you did and have had some time home from the hospital. My last couple of days before going back in the hospital were focused on eating my favorite foods while I still could! Love you guys!
ReplyDeleteCody
Snuggle!!
ReplyDeleteIt seems like every time I turn around someone or something is telling me to slow down and enjoy the moments I have with my kids. I want to scream and shout I AM!! I AM enjoying the moments!! But the truth is time still marches on and even when you slow down and enjoy it time just keeps on marching. Thank goodness for cameras. (Fun pics of Independence day, BTW.) But hopefully time's marching will be in your favor and Christmas will come and complete freedom from Primary's will be the great celebration. I'll be thinking of you and praying for you on Friday!
ReplyDelete