On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Thursday, July 22, 2010

There is no snooze button on toddler

"Life is something that happens when you can't get to sleep."
Fran Lebowitz

I have sleep on my mind. It's noon and we (okay, maybe I mean "I") already want to crash for the night. For the past two days Erin has been crying during her naps and during the night. She screams "no" in her sleep and often whimpers or cries out and kicks, then she immediately goes back to sleep. She does this about every 20 minutes throughout the night. Last night I went out to talk to the nurse about it and we ended up giving her some anti-nausea medication that has a little sedative in it which did help somewhat.

I can't seem to pinpoint why she is having trouble sleeping. It could be that she is nauseous or in pain. I am starting to wonder though if it's a psychological issue. I think that she is feeling trapped here in the hospital, we haven't been together as a family for over a week, and she misses her brother and sister. I think she is getting restless being confined to her hospital room and even though she is pretty used to all the daily hospital procedures she really doesn't enjoy them. So, maybe it's all just bad dreams she's having through the night. Maybe this is her way of coping with her situation, since she is usually pretty happy throughout the day.

When breakfast came this morning she was ready to dig in, but after taking one bite of each thing on her tray she just broke down. I quickly got the nurse in here and we got some Zofran (anti-nausea) in her system and then she was able to drink an entire carton of milk a half hour later. I think she's dealing with some pretty strong nausea.

She's really good despite how she is feeling. Right now she's singing and doing doctor-type things to her baby. She's an Oncolgist in the making. Her ANC is zero, but that is what we expect. Her other counts look pretty good thanks to her blood transfusion and the platelets.

1 comment:

  1. Maybe all of the above. I am sure everything all together is traumatic on her little spirit. I can't imagine all she has been through. I know footrubs with lotion help my children sleep but I think you might be far beyond that sort of thing :)