On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Tuesday, July 27, 2010

More Procedures.

Erin's repaired central line is working. During the night the nurse came in to check on it and I was snuggling Erin in her bed. She tried the line and it didn't work, I looked at it and realized that the line was still clamped shut. When they put the new line on they also put on a new clamp, so her line has 2 clamps (it should only have one, we need to cut one of them off). All the time she was checking the line while only one clamp was open, so the tPA was only in the line and wasn't even to the point where clots could be. Basically, her line worked fine all the time, it was just doubly clamped and the nurse didn't know it.

This morning Erin woke up fine, but by 9:00 am her fever had returned to 103 degrees. She is also having diarrhea. Dr. Verma and Dr. Barnett just came in and she's scheduled for a CT scan to see if there are any signs of infection so that they can target it. She is also being checked for an infection in her gut due to the diarrhea. It is also likely she could have some fungal infection. There are endless possibilities when her immune fighting white blood cells (ANC) are zero. Her own normal bacteria in her stomach could be giving her an infection. Hopefully we'll have some answers this evening. She's pretty happy right now, she's sitting on my lap playing with her wooden blocks and watching Cinderella.

2 comments:

  1. I'm so sorry that it's been rough these last few days! I hope you can find the source and help her find some relief and rest. We're praying for her and your family still.

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  2. We'll be praying that they can figure out the problem and get it taken care of so that she can feel better and get the rest she needs. Thank you for keeping us all updated.

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