Erin's repaired central line is working. During the night the nurse came in to check on it and I was snuggling Erin in her bed. She tried the line and it didn't work, I looked at it and realized that the line was still clamped shut. When they put the new line on they also put on a new clamp, so her line has 2 clamps (it should only have one, we need to cut one of them off). All the time she was checking the line while only one clamp was open, so the tPA was only in the line and wasn't even to the point where clots could be. Basically, her line worked fine all the time, it was just doubly clamped and the nurse didn't know it.
This morning Erin woke up fine, but by 9:00 am her fever had returned to 103 degrees. She is also having diarrhea. Dr. Verma and Dr. Barnett just came in and she's scheduled for a CT scan to see if there are any signs of infection so that they can target it. She is also being checked for an infection in her gut due to the diarrhea. It is also likely she could have some fungal infection. There are endless possibilities when her immune fighting white blood cells (ANC) are zero. Her own normal bacteria in her stomach could be giving her an infection. Hopefully we'll have some answers this evening. She's pretty happy right now, she's sitting on my lap playing with her wooden blocks and watching Cinderella.