Our family got together today for the first time in 11 days. Erin has been asking and asking when she gets to see Cecily and Caleb. Well, today she got to spend most of the day with them. She was so excited when we came through the door. She just ran to the door and hugged each person and she jumped up and down and squealed so much.
The kids really had a blast playing together.
The kids got sillier and sillier as the day went on.
(John too. That reminds me, ask him about what happened to his pants on his drive home - he he)
Caleb taped himself up with surgical tape.
Erin just being her cute little self.
It really is wonderful to be together. The kids have adjusted well to our hospital schedules and we seem to be in a pretty good groove. It has come with its bumps, but overall I've been very grateful that we've been able to survive the last 5 1/2 months of this chaos.
Erin is really happy and just seems to be flying through this last round. So far, it has been her easiest round. The Doctors seemed to think it would be one of the worst. Really! She hasn't had any fevers and her energy level is almost normal. She is eating and pooping and peeing pretty normal (only a person who lives in a hospital talks about peeing and pooping - you can tell I've been here too long). She hasn't thrown up since our drive here. Last night we took her off the Zofran (anti-nausea medication) and she has eaten really well today. She is still taking Meropenem and Clindamycin for her cellulitis. We truly have been blessed. We've had our dark days and everything just seems to be much easier now.
I am so thankful.
Sometimes it is hard for me to be happy for how Erin is doing when I see so many kids and families who are suffering so much. Too much. Today one of our friends took their newborn baby off of life support. She has been having seizures every 2 minutes since birth and the Doctors just couldn't do anything for them. I have been thinking about this family all day and my heart has been so full of sorrow for this difficult time.
Living in the hospital has really brought out so many new found emotions within me. It has been such an eye opening experience. Some days I don't want to meet anyone new or talk to anyone about why they are here and other days I want to talk to everyone and cry with them. I wonder if I will miss the experiences I am having here when we are through? I know that I will not miss having our family apart.
Erin's white blood count has been slowly (really slowly) creeping up (0.4 and 0.5). That is the first sign that her ANC will start coming up. I just can't wait to bring her home and get our house decorated for Christmas. This is one Christmas that will forever be etched in our minds and hearts.
Thank you for your prayers!