On June 1, 2010 our two year old, "Little Air Bear," was diagnosed with Childhood Acute Myeloid Leukemia (AML) Type M7. After enduring 146 days at Primary Children's Hospital, Erin is now in remission and living a full life at home with our family. Her strong will and constant happy smile is an inspiration to us all. Through our difficult circumstances we found great strength and peace in our Savior, Jesus Christ. Thank you for checking in on us.

Tuesday, November 2, 2010

New Strategy

Okay.  I had a good long chat with Dr. Fluchell today.  He told me about his meeting with the Infectious Disease doctors and other Oncologists.  Frankly, I think they're all a bit puzzled.  We're going to keep Little Air Bear on the Vancomycin and the Meropenem, but she's going to start taking Clindamycin orally.  They debated about giving it to her through the IV, but they don't want to kill us off by having to do all these IV medications.  Seriously, we haven't slept in WEEKS (well, really months)!  So, the Clindamycin is pretty awful tasting, but we're going to get the Pharmacy at Primary Children's to mix it up with some yummy tasting syrup, probably Root Beer flavoring since that's Erin's favorite.

Now, the latest news is that she has an appointment tomorrow with a Pediatric Gynecologist through the Uof U.  It is very hard to find a Gynecologist who specializes in Pediatrics, but we've got one and they fit her in during their lunch hour.  So, to tell you more about her Cellulitis since I'm sure you're wondering now more about the details on it.  It's a tough subject for us since it's in such a private part of her body.  The Cellulitis is located on her right Labia and is about the size of a pea pod.  It's got to be really uncomfortable, but Erin seems to barely notice it now.  We wish it was GONE!  GONE GONE GONE!  So, hopefully the Gyno will have some magic powers!

They team of doctors also metioned that it could (BUT VERY UNLIKELY) be a Chloroma.  A Chloroma is a collection of Leukemia cells outside of the bone marrow.  It's very unlikely that she has a Chloroma because she developed the sore shortly after being given some super duper strong chemotherapy drugs.  As you can see, we're looking at all avenues.

As long as I'm talking about things that we are trying to figure out. . . today I noticed that Erin's line is making a wheezing sound when I push anything through it.  The noise is coming from the area where her line was repaired.  Niiiiiice.  Probably going to have to fix it tomorrow when she's up there.  Just one more thing to add to the list.

John is going to make the trek to Primary Children's tomorrow morning.  Wish him luck!  I hope that he comes home with a happy girl who has some answers on her Cellulitis sore.

4 comments:

  1. I enjoy your updates. The good, the bad and the ugly. You are very good at keeping everyone updated. Good luck tomorrow.

    ReplyDelete
  2. I hope you get some answers! And that this new antibiotic helps out. We're praying for her!

    ReplyDelete
  3. We are praying you get some answers and the cellulitis heals up quickly. Hang in there.. you guys are doing great!

    ReplyDelete
  4. Hey, You have probably already considered this, but is it possible that her diapers are related to this? I guess Pampers changed their formula a while ago and several of my friends said that their kids started having constant and really bad diaper rashes. Where she has such limited immunity maybe she's more sensitive to a certain diaper? I dunno how likely that is.
    Good luck in Salt Lake!

    ReplyDelete