My friend Chelsea has a beautiful 5 year old daughter who has Leukemia (ALL - Acute Lymphoblastic Leukemia) and she has been active in learning about cancer. I admire her courage to step up and get involved. She has been a good example to me. She shared this video on her blog and it just touched me so deeply that I wanted to share it with you.
September is Childhood Cancer Awareness Month!
You can learn more at Cure Search.
I don't know if I've ever talked about how we are part of a clinical study through Primary Children's Medical Center and other participating Children Oncology Groups. The day Erin was diagnosed we were given a briefing and a big stack of papers about a clinical study on using a new chemotherapy drug to fight Acute Myeloid Leukemia. John read meticuoulsly through the study (highlighting his questions) and I browsed over most of it looking for things that I understood.
To participate, we signed some paperwork, but those who received the new chemotherapy drug were chosen through a lottery. We both felt strongly that we should participate in the study, but neither of us wanted to try out the new drug on our daughter. We prayed a lot about it. We decided it was right to participate in the study. A few hours after signing the papers we were informed that Erin was not chosen to receive the new chemotherapy drug. We are thankful that Erin is part of a study to help other's fight Acute Myeloid Leukemia. We are thankful that there are people out there who are helping us fight cancer.
Thank you for sharing.
ReplyDeleteI hope you are all able to view this video. If you are having trouble viewing it, you can get it at this link to youtube
ReplyDeletehttp://www.youtube.com/watch?v=AGS4yE5v9rM
Jill, My mom just told me about your little Erin and what she is going through. My heart goes out to you guys. I will remember your family in my prayers. Your kids are darling and I can't imagine what you have been through. You are an inspiration! Melissa (Lindsey) Marchant
ReplyDeleteWow, I never should have watched that at work. Thanks for sharing.
ReplyDeleteMelissa, I thought I'd lost track of you. I am so glad that we are connected again! Thank you for your prayers!
ReplyDeleteLisa Marie, yes, this is a tear jerker!
Our family gearing up to do a balloon release with other families in the Cache Valley area in two weeks. This will be a first big, visual reminder to us on our loss of Allisyn. It takes a while to feel like you can put yourself out there - your raw emotions - to reach out to others who are also experiencing what you are going through. Our prayers are with you every day. We have found out so much about CDH that we are going to start a nonprofit to continue the research and honor our daughter. Give me hugs or tears next door any time you need to.
ReplyDelete